Liam’s Journey: An update


You may remember the story of Liam Hickey, the lively “one in a million” boy. Liam was diagnosed with a rare disease called, Opsismodysplasia. It’s a condition that less than two dozen people in the world have. 

Liam has the bone age of a newborn. As he grows, he shrinks, because his bones can’t support his body. 

Earlier this year the Make – a – Wish Foundation granted his wish, and he went off to Disney world. Now he’s back and is up against his biggest hurdle yet, surgery.

On Monday, Liam underwent his first surgery to get his “superhero” legs. 

Liam underwent a double lower leg osteotomy. After his surgery he will be fitted for an external fixation hardware for a minimum of three months to straighten his leg bones. Then he will  need to learn to walk again. That alone is a long and often daunting process; mentally, physically, and economically.

That’s why the family has a created a GoFundMe page called Liam’s Journey to help offset any cost that may come with surgery and any future events. 

Through it all, he’s still laughing, he’s still smiling, and he still brightens the room.

Nothing is impossible for the “one a million boy”. 

To access the GoFundMe page, click here.

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