Kathleen and James Higgins lost their two daughters to Li Fraumeni Syndrome – an inherited genetic cancer disorder.
Li Fraumeni Syndrome affects as many as 1 to 5,000 people. It’s a genetic mutation that affects the Tp53 gene, the cancer suppressor gene. It presents itself in many major cancers, mostly in young people under 40.
The Higgins started the organization “Mo Songs for Kerry” which is named after their daughters to raise money for LFS and cancer research.
Saturday, they will host their 4th annual “Mo Songs for Kerry” event in Waverly.
The organization raises money for children that have LFS and need full body MRI’s or screening to catch cancers early. Many insurance companies do not pay for the MRI’s.
A portion of the proceeds at the upcoming Mo Songs for Kerry will support Sayre House of Hope.
The fundraiser will be held Saturday, July 29 at the East Waverly Park on Ithaca St in Waverly, N.Y. The day’s events begin at 10 a.m. until 8 p.m. and include a music festival, a craft show, carnival games for kids, BBQ lunch, a charity antique auction and an antiques flea market.
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